Posted on December 4, 2013*Note: From the very founding of our organization, ADAO has abstained from providing any medical or legal referrals. ADAO remains an independent organization that is not influenced by outside sources, such as drug companies, law firms, or companies that manufacture or use asbestos.
Many of us can think back to the heartbreaking time when we first heard the news that a loved one had an asbestos-caused disease. “Mesothelioma – can’t pronounce it, can’t cure it,” was my devastated, personal reaction. It took me many weeks to even begin to understand the diagnosis my husband had received and find the very limited treatment options available to him. My learning curve was steep and Alan was diagnosed before the advancement of the smart phone. Navigating the health care system maze is complex – but it shouldn’t be. The Asbestos Disease Awareness Organization (ADAO) is committed to replacing those feelings of fear, loneliness and confusion with the knowledge that there are others who share your experience and want to support you. We want you to have easy access to information about medical resources for asbestos-caused diseases. The National Cancer Institute has an excellent page, in English and Spanish, to answer your questions on “How To Find a Doctor or Treatment Facility... |
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(c) 2010-2024 Jon L Gelman, All Rights Reserved.
Showing posts with label Alan. Show all posts
Showing posts with label Alan. Show all posts
Thursday, December 5, 2013
ADAO Resource: How To Find a Doctor or Treatment Facility Specializing in Mesothelioma and Asbestos-Related Diseases
Saturday, November 16, 2013
H.R. 982 is anti-victim, anti-veteran and anti-privacy
My husband, Alan, was diagnosed with mesothelioma in 2003. We had never heard of the asbestos-caused cancer, mesothelioma, and shortly learned it was incurable.
Alan chose to have a radical surgery which removed a rib and his left lung, stripped off his pericardium from his lungs and surgically replaced his diaphragm – all in hopes of more time with us. In 2005, the cancer came back on his remaining lung. Alan felt like he was breathing through a pinched straw, every breath, every minute, every day. When his oxygen levels became critically low, he was tethered to supplemental oxygen. He fought a hard battle with chemotherapy for nearly a year. In 2006, Alan took his last breaths with our then 13-year-old daughter and me by his side. Alan paid the ultimate price for his job – his life. Our daughter was only ten years old when we began our arduous family battle to fight mesothelioma and work with Congress to ban asbestos. Today I fight on behalf of Alan and those who have been exposed, are suffering, or have been silenced by asbestos. I can tell you that the FACT Act (H.R. 982) is just another special interest bill. Sick and dying patients suffering from mesothelioma and other asbestos-caused diseases and their family don't have the time and money to endure one more bureaucratic hurdle that delays compensation, denies justice and puts asbestos warriors privacy at risk. This is just what H.R. 982 would do. H.R. 982 is just the latest tactic in this... |
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